You want to see what you want to see. This is, in a way, the discourse of the health authorities since the beginning of the opening phase of ” My health room » throughout the territory. The half-confessed goal of Avenue Duquesne is to put the shared medical record (DMP) and its setbacks on the shelf of bad memories forever. But if the sea serpent of digital medicine, which has been in the news since 2004, does indeed have a sequel, it does not mean that we have reached the last episode of this series of twists and turns.
First observation: While the health insurance and the Ministry of Health launched “Mon Espace Santé” with great fanfare at the end of January, account openings are only gradual and should continue well into 2022. These openings are automatic: every Frenchman receives a letter informing him of the creation of his account, and must appear if he wishes to oppose it. It will certainly make it possible to create many more accounts than for DMP, but which takes time: the letters are sent in waves, according to the department numbers.
This explains why, for many practitioners, the newcomer remains, above all, a great stranger… while being uncomfortably familiar to them. ” At the moment, what relatives have seen in their current practice is only a large part of “My Health Room”, namely the old DMP “, explains Dr. Olivier Babinet, director of the “Digital Ségur” project at the PACA Regional Health Agency (ARS). This does not prevent him from promising that the new tool will make it possible to ” generalize the fluid and secure exchange of health data between professionals and with the user “.
How ? By integrating 4 pillars. ” “My Health Space” contains a DMP “new formula”, which will record the history of its predecessor, which will contain a medical summary and which the patient can choose to close and open to whomever he wants.describes Olivier Babinet. There will also be a messaging system that allows secure exchange between health professionals and patients, much preferable to the all-too-often used Gmail and WhatsApp, a store that will be available in 2022 that will provide access to health apps branded by the state, and finally a health agenda. »
Hope and doubt
Will this DMP on steroids succeed in convincing GPs? Nothing is less secure. ” In its current form, the interest in accepting an MES seems limited to certain categories of the population “, wrote the (recently retired) Dr. Dominique Dupagne last April on his blog Atoute.org. This digital health pioneer pointed to several limits, noting, for example, that apart from specific target groups such as the elderly or even patients who find it difficult to keep administrative documents in a proper way, the practical benefit of the digital proves to be thin . . On the other hand, the automatic feeding of the patient record by the health personnel ” will take time to set up “, he emphasized.
And precisely, as far as the DMP is concerned, the acquisition of the new tool seems to be the key to the success (or failure) of “Mon Espace Santé”. ” There are still a few steps to go through, and especially the adoption of all this “, judge Xavier Augay, president of Icanopée, a software publisher that makes a professional use of the information in the DMP to reproduce, in his words, ” this inept useful machine “. And although, according to him, the adoption of the patients could happen quite quickly, because they have ” a direct benefit of having all the information in one place », reception by professionals is likely to be more distant. ” Most of their computer technology hasn’t really evolved in 25 years, it’s a sclerotic environment and many struggle to comply ” says the entrepreneur. In other words: to erase almost 20 years of failure for DMP, we will have to put in a lot of effort.
And data security?
For Coralie Lemke, journalist, author of My health, my data (Premier Parallèle, 2021) and former collaborator of What then doctorwe still lack elements to be assured of the security of the data stored in “My Health Space”.
What’s up doc: What do you learn from “Mon Espace Santé” in terms of data security?
CL: The problem is that if we have information on the question of how such and such a document will be accessible to such and such a professional, we currently have far fewer details about data security. Will there be encryption, for example? Because now we don’t know.
Is there a risk of a repetition of the problems encountered Health data hubwhich had been hosted by a company subject to US law?
CL: No, because we know the host will be French and meet the GDPR criteria (General Data Protection Regulation, which guarantees the security of personal data at European level, ed.). On the other hand for Health data hub, there was an obvious purpose, which was to advance science, find new treatments, etc. The issue of adoption by patients and professionals therefore seems more complicated to me.
Do you think trust is likely to be affected?
CL: I think that for patients, the issue of the automatic creation of a space that you have to explicitly refuse if you don’t want it risks actually changing trust. It is also a shame because there is a real benefit to using, to communicate with relatives, secure tools such as those offered by “My Health Space” instead of Drive, Gmail and other WhatsApp that we use in the moment.